Additional file 2 of Burden of hereditary angioedema: results from a multinational survey of caregivers for adult and pediatric patients

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Authors: Maureen Watt, Inmaculada Martinez-Saguer, Angela Simón, Ryan Murphy, Marie de la Cruz, Ricardo Dario Zwiener, Mauricio Sarrazola, Anete Sevciovic Grumach
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Abstract

Supplementary Material 2: Additional file 2: Supplementary Tables 1–12. Supplementary Table 1 Caregiver-reported demographic and clinical characteristics of pediatric patients with HAE by country. Supplementary Table 2 Caregiver-reported demographic and clinical characteristics of pediatric patients with HAE by age group. Supplementary Table 3 Areas of the body affected by any HAE attack ever experienced in pediatric patients with HAE. Supplementary Table 4 Type of care provided by caregivers of pediatric patients with HAE by country. Supplementary Table 5 Self-reported impact on daily activities of caregiving to pediatric patients with HAE by country. Supplementary Table 6 Self-reported impact on relationships of caregiving to pediatric patients with HAE by country. Supplementary Table 7 Self-reported impact on emotional well-being of caregiving to pediatric patients with HAE by country. Supplementary Table 8 Caregiver-reported clinical characteristics of adult patients with HAE by country. Supplementary Table 9 Type of care typically provided by caregivers of adult patients with HAE. Supplementary Table 10 Self-reported impact on daily activities of caregiving to adult patients with HAE by country. Supplementary Table 11 Self-reported impact on future planning of caregiving to adult patients with HAE by country. Supplementary Table 12 Self-reported impact on emotional well-being of caregiving to adult patients with HAE by country

Fields of Study & Subjects

Coagulation Bradykinin Polyphosphates and Angioedema Nursing care and research Family and Disability Support Research

Publication details

Journal / source
Figshare
Publication date
1 January 2026
Language
EN