Informal caregivers’ perceptions of the transition from home to nursing home

Context: With an aging population and an increase in neurodegenerative disorders, the role of informal caregivers is becoming essential to helping people remain in their homes. However, little is known about their experiences after a loved one is admitted to a nursing home. Objective: To explore caregivers’ perceptions of how their role changed after a loved one with neuro-degenerative disorders was admitted to a nursing home, as well as the emotional and relational tensions associated with this change. Method: A mixed qualitative approach was used: a narrative review of the literature (Scale for the Assessment of Narrative Review Articles – SANRA – grid) and ten semi-structured interviews conducted between 3 and 24 months after institutionalization. The analysis follows Standards for Reporting Qualitative Research. recommendations. Results: The study reveals a transition from the role of caregiver to emotional support, marked by feelings of relief, guilt, loss of bearings, and maintenance of emotional ties. Lack of knowledge about support systems increases the mental burd. Conclusion: Moving into a nursing home does not end the role of caregiver. Recognizing this continuity and adapting support systems is crucial to preventing isolation and strengthening collaboration between caregivers and professionals.