Structured Care Protocol for Caregivers of Cerebral Palsy Cases: A Narrative Review

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Authors: Indu Prakash Alwadkar, Deeplata Mendhe Mahesh Mendhe, Jaya Pranoykumar Gawai
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Abstract

Structured care protocols such as Parent and Caregiver Training (PACT) frameworks have emerged as a promising strategy to address the substantial multidimensional burden experienced by caregivers of individuals with Cerebral Palsy (CP). Caregivers frequently face physical, emotional, social, and financial stressors, compounded by inadequate information, poor access to services, and limited structured support, particularly in low‑resource settings. This narrative review synthesises current literature on the concept, characteristics, and impact of structured care protocols for CP caregivers, with specific emphasis on educational, psychosocial, skill‑building, and resource‑navigation components. A focused search of major databases identified studies and reviews describing caregiver‑focused interventions, structured programs, and multidisciplinary models of care relevant to CP. The evidence indicates that PACT‑type protocols can enhance caregiver knowledge, practical caregiving skills, self‑efficacy, and perceived competence, which in turn are associated with reduced stress, lower caregiver burden, and improved quality of life for both caregivers and children. Key elements include systematic education on CP and home‑based management, training in daily care and therapeutic activities, facilitation of access to medical, rehabilitative, social, and financial resources, and integration of psychosocial support and peer networks. Emerging work also highlights the potential of digital health platforms to improve scalability, continuity of support, and personalisation of these interventions across diverse sociocultural contexts. Nonetheless, gaps remain regarding standardised PACT models, culturally adapted content, and robust long‑term outcome data, especially in developing countries. Future research should prioritise the development, implementation, and controlled evaluation of context‑appropriate structured care protocols to optimise caregiver well‑being and child outcomes in CP.

Fields of Study & Subjects

Family and Disability Support Research Cerebral Palsy and Movement Disorders Nursing care and research

Publication details

Journal / source
JOURNAL OF CLINICAL AND DIAGNOSTIC RESEARCH
Publication date
11 February 2026
Language
EN