Amyloidosis Speakers Bureau (ASB) exploring patient narratives

This dataset includes survey data set as well as mailings data used in this study. The Amyloidosis Speakers Bureau arranges for amyloidosis patients to speak about their diagnostic and treatment experiences with medical students. Using survey of U.S. medical students (N=1,634) and ASB amyloidosis health information mailings (N=50), this study hypothesized that patients' narratives about their diagnostic and treatment journeys would positively impact medical students’ information-seeking behavior about this disease.