The psychosocial experiences of nurses and family caregivers in palliative and end-of-life care

Aim: The aim of the current review was to synthesise literature exploring the psychosocial burdens experienced by family caregivers during community-based palliative and end-of-life care in the United Kingdom (UK). Methods: A systematic literature review was conducted using five databases (PsycInfo, Medline, Embase, CINAHL, Web of Science). Thirteen articles satisfied the eligibility criteria for inclusion. Results: Thematic synthesis was used to identify five key themes within the literature: Care Without Pause, Confronting Death, A Challenged Sense of Self, Unravelling Social Worlds, and The Weight of Care. The findings suggest that family caregivers experience significant psychosocial burdens during the palliative and end-of-life period when caring for their loved-ones. Conclusion: Recommendations for clinical practice include using Acceptance and Commitment Therapy when family caregivers present to services for psychological support. Recommendations for services include co-producing service developments with family caregivers. Recommendations for policy improvements emphasise the need to consider family caregivers needs and experiences when formulating strategic plans and targets. It is recommended that future research investigates further the meaning family caregivers attribute to their lived-experiences of providing care during the palliative and end-of-life care period.