Working Elements Of Interventions Promoting Family Involvement For People With Epilepsy And/Or An Intellectual Disability In Residential Care: A Scoping Review

Increased family involvement in the care of children and adults with epilepsy and/or an intellectual disability (ID) living in residential care can improve their quality of life and the continuity of their care. This scoping review aims to explore existing interventions that are used to promote family involvement for this target group and to define what the working elements of such interventions are. We include publications on interventions promoting some form of family involvement, family engagement, or collaboration between relatives and healthcare professionals (concept) in residential care (context) for children and (young) adults (population). This concerns people with epilepsy and/or an intellectual disability living separately from their families in residential care, group homes, assisted living etc., and their families. Exclusion criteria: respite care or other short-term residential care (